About our Branch
The Halifax branch is very active in raising awareness and fundraising throughout the year. We have a Committee of 10 and a group of key volunteers who we rely on to fundraise throughout the year to enable us to offer a wide list of benefits and therapy classes for members throughout Calderdale. We get no financial support from the main charity and rely on these funds together with other donations and legacies left by members.
Our Aims and Benefits
Our main aim is to offer support and help to anybody diagnosed with Parkinson's, their family, carers and to help all of them through mutual support.
We have 2 monthly meetings to provide support and friendship to those living with Parkinson’s, whether they have the condition or support somebody with it.
Our Primary meeting takes place at:
on the 2nd Saturday every month,
from 2pm - 4pm (except August and December)
Our 2nd meeting is an informal Parkinson's Cafe, situated in:
HX1 1SB on the last Wednesday of the month,
starting on located within the 1st Floor Cafe.
2pm - 4pm (except December)
How to become a member
Becoming a member is easy, just ring the membership number on 0808 800 0303
(Please mention that you would like them to pass on your details to the Halifax Branch)
or contact Ian (Membership secretary) on 01422 256521
We have a Parkinson's Local Adviser, Janet Edmunds
Janet can be contacted on 0344 225 3638.
Whether you are newly diagnosed, or have had the condition for a number of years, looking for tips or needing support from professionals, or just some advice from our members - Janet will be able to advise you. She has knowledge about the services available in our local area from the NHS and other sources. Janet is experienced in benefits, employment issues, grants and financial help that are available locally.
The Parkinson’s Disease Society was founded on 26th February 1969, by Mali Jenkins in Tunbridge Wells. The Halifax branch was co-founded in October 1970 by Hilda Hitchen and her minister at King Cross Methodist Church. Hilda had contacted Mali to discuss PD and mutually support each other. Both had loved ones with Parkinson's: Mali's sister had been diagnosed with Parkinson's and 16 years earlier Hilda's husband had been diagnosed, aged 40, only six years after their wedding.
Hilda Hitchen was a remarkable lady. Despite there being no help or support available and very little known about therapies, she managed to spread the word about PD, care for her husband and work tirelessly within the branch for nearly 30 years to the help those in Halifax, and surrounding areas, with PD.
Even after the death of her husband in 1974, until her own failing health forced her to take a back seat in 1999. She continued in her role of Vice President of the branch, giving out information until her death in 2004.
Hilda was one of the first people to be made an Honorary Life Member of the Society and the framed certificate signed by Princess Diana took pride of place in her living room. One of Hilda’s ambitions was to set up a Specialist Parkinson’s Nurse Service and just prior to her death in 2004 we were very pleased to be able to tell her of our success in securing a nurse in Calderdale.
Hilda once said ‘Of course, I would rather Parkinson’s hadn’t existed in my life, but through the PDS I’ve learned an awful lot, I have made so many good friends, locally and nationally, and it has expanded my life so much.
A Present from the Past
According to Parkinson’s UK, 50% of people with Parkinson’s develop dementia within 8 years of being diagnosed. Their research shows that 80% of patients who have had Parkinson’s for 20 years or more will have developed dementia.
The result can be a loss of confidence and increasing isolation.
This fact from Parkinson's UK was the reason that Phil Beckett set up this project. If after reading this, you would like to place your name on a list, to take part in a future session if they become available, please contact Phil on 01484 713035 for further information.
Open to anybody with Parkinson's but the project is aimed, particularly, at people living with Parkinson’s and who are suffering from mild dementia.
Dementia is defined here as some memory loss, slowness of thought and a general reduction in mental capacity.
Phil and volunteers will provide support and assist participants to recall their memories and trigger recollections, through stimulants such as:
Music Sharing memories
Listening to others’ recollections
Seeing and handling artefacts; and memorabilia
Phil and his team also help participants to make voice recordings, if they wish, of their memories, so they can take a CD, or a similar form of storage, to keep and share with their families and friends.
Participants might like to leave the recordings with younger family members as a record of their lives or experiences. Some participants might want to produce written accounts of their memories, or complete a document to leave for their families, answering questions to trigger memories, but often these will just be a starting point, with memories coming tumbling out, especially when they hear others speaking about their recollections.
If participants are willing, they could be radio show guests to talk about the past or some of the recorded memories could be edited to be broadcast and reach and benefit a wider audience. If desired participants could remain anonymous, or elect not to be part of any such radio show. This would be for each individual to decide, there would be no pressure to do so.